110 publication(s) trouvée(s)
Article scientifique
Participant and researcher understandings of research responsibilities in malawi: a comparative analysis
PURPOSE: Current literature seldom discusses the functions and duties of individuals participating in medical research and the importance they attribute …
Article scientifique
Translational bioethics in nursing: a conceptual review of definitions, applications and ethical implications
BACKGROUND: Bioethics is fundamental in healthcare, guiding ethical decision-making and patient care. Translational bioethics (TB) aims to bridge the gap …
Article scientifique
Risks and benefits of engaging youth living with HIV in research: perspectives from Kenyan Youth, caregivers, and subject matter experts
BACKGROUND: Involving children and adolescents (youth) living with HIV (YLWH) in research is critical for developing appropriate HIV care services …
Article scientifique
Developing a master of science in health research ethics program in Northern Nigeria: a needs assessment
BACKGROUND: Nigeria is an emerging hub of biomedical research, requiring additional trained bioethicists for ethical oversight of research studies. There …
Article scientifique
Shared decision-making between patients and healthcare providers at rural health facilities in Eastern Uganda: an exploratory qualitative study
BACKGROUND: Shared decision-making in healthcare is a collaborative process where patients are supported to make informed decisions according to their …
Article scientifique
Ethical issues in vaccine trial participation by adolescents: qualitative insights on family decision making from a human papillomavirus vaccine trial in Tanzania
BACKGROUND: Research in children is essential for them to benefit from the outcomes of research but involvement must be weighed …
Article scientifique
Exploration of clinical ethics consultation in Uganda: a case study of Uganda Cancer Institute
INTRODUCTION: Globally, healthcare providers (HCPs), hospital administrators, patients and their caretakers are increasingly confronted with complex moral, social, cultural, ethical, …
Article scientifique
Ethical considerations during Mpox Outbreak: a scoping review
BACKGROUND: Historically, epidemics have been accompanied by the concurrent emergence of stigma, prejudice, and xenophobia. This scoping review aimed to …
Article scientifique
Perspectives of researchers, science policy makers and research ethics committee members on the feedback of individual genetic research findings in African genomics research
BACKGROUND: Genetic research can yield information that is unrelated to the study's objectives but may be of clinical or personal …
Article scientifique
Who to engage in HIV vaccine trial benefit-sharing negotiations? An empirical proposition of a framework
BACKGROUND: A morally sound framework for benefit-sharing is crucial to minimize research exploitation for research conducted in developing countries. However, …
Article scientifique
A scoping review of ethics review processes during public health emergencies in Africa
BACKGROUND: The COVID-19 pandemic forced governments, multilateral public health organisations and research institutions to undertake research quickly to inform their …
Article scientifique
Research ethics and artificial intelligence for global health: perspectives from the global forum on bioethics in research
BACKGROUND: The ethical governance of Artificial Intelligence (AI) in health care and public health continues to be an urgent issue …
Article scientifique
Knowledge, attitudes, and practices of the ethics in medical research among Moroccan interns and resident physicians
BACKGROUND: In Morocco, medical research ethics training was integrated into the medical curriculum during the 2015 reform. In the same …
Article scientifique
Comprehension of informed consent and voluntary participation in registration cohorts for phase IIb HIV vaccine trial in Dar Es Salaam, Tanzania: a qualitative descriptive study
BACKGROUND: Informed consent as stipulated in regulatory human research guidelines requires volunteers to be well-informed about what will happen to …
Article scientifique
Layered vulnerability and researchers’ responsibilities: learning from research involving Kenyan adolescents living with perinatal HIV infection
BACKGROUND: Carefully planned research is critical to developing policies and interventions that counter physical, psychological and social challenges faced by …
Article scientifique
Moral approval of xenotransplantation in Egypt: associations with religion, attitudes towards animals and demographic factors
Xenotransplantation has great potential as an alternative to alleviate the shortage of organs for donation. However, given that the animal …
Article scientifique
Community engagement in genetics and genomics research: a qualitative study of the perspectives of genetics and genomics researchers in Uganda
BACKGROUND: Generally, there is unanimity about the value of community engagement in health-related research. There is also a growing tendency …
Article scientifique
Ethical considerations for biobanking and use of genomics data in Africa: a narrative review
BACKGROUND: Biobanking and genomic research requires collection and storage of human tissue from study participants. From participants' perspectives within the …
Article scientifique
Practice of defensive medicine among surgeons in Ethiopia: cross-sectional study
BACKGROUND: Defensive medicine is physicians' deviation from standard medical care which is primarily intended either to reduce or avoid medico …
Article scientifique
Perspectives of agriculture, nutrition and health researchers regarding research governance in Malawi. Using a leadership, ethics, governance and systems framework
BACKGROUND: Research ethics is intertwined with and depends on building robust and responsive research governance systems alongside researchers. Globally there …