110 publication(s) trouvée(s)
Article scientifique
Qualitative inquiry into adolescents’ experience of ethical challenges during enrollment and adherence to antiretroviral therapy (ART) in Temeke Regional Referral Hospital, Tanzania
BACKGROUND: Adolescents living with human immunodeficiency virus (HIV) experience challenges, including lack of involvement in their care as well nondisclosure …
Article scientifique
Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study
BACKGROUND: A fundamental ethical challenge in conducting genomics research is the question of what and how individual level genetic findings …
Article scientifique
Health professionals' knowledge and attitude towards patient confidentiality and associated factors in a resource-limited setting: a cross-sectional study
BACKGROUND: Respecting patients' confidentiality is an ethical and legal responsibility for health professionals and the cornerstone of care excellence. This …
Article scientifique
Operationalising a real-time research ethics approach: supporting ethical mindfulness in agriculture-nutrition-health research in Malawi
BACKGROUND: There have been notable investments in large multi-partner research programmes across the agriculture-nutrition-health (ANH) nexus. These studies often involve …
Article scientifique
The role of community advisory boards in community-based HIV clinical trials: a qualitative study from Tanzania
BACKGROUND: Community Advisory Boards (CAB) have become essential organs of involving communities in HIV clinical trials especially in developing countries. …
Article scientifique
Examining study participants’ decision-making and ethics-related experiences in a dietary community randomized controlled trial in Malawi
BACKGROUND: The participant recruitment process is a key ethical pivot point when conducting robust research. There is a need to …
Article scientifique
Navigating abortion law dilemmas: experiences and attitudes among Ethiopian health care professionals
BACKGROUND: Ethiopia's 2005 abortion law improved access to legal abortion. In this study we examine the experiences of abortion providers …
Article scientifique
Capacity of community advisory boards for effective engagement in clinical research: a mixed methods study
BACKGROUND: Community engagement is a key component in health research. One of the ways health researchers ensure community engagement is …
Article scientifique
Perspectives and ethical considerations for return of genetics and genomics research results: a qualitative study of genomics researchers in Uganda
BACKGROUND: The return of genetics and genomics research results has been a subject of ongoing global debate. Such feedback is …
Article scientifique
How to navigate the application of ethics norms in global health research: reflections based on qualitative research conducted with people with disabilities in Uganda
BACKGROUND: As Canadian global health researchers who conducted a qualitative study with adults with and without disabilities in Uganda, we …
Article scientifique
COVID-19 underscores the important role of Clinical Ethics Committees in Africa
BACKGROUND: The COVID-19 pandemic has magnified pre-existing challenges in healthcare in Africa. Long-standing health inequities, embedded in the continent over …
Article scientifique
A situation analysis of competences of research ethics committee members regarding review of research protocols with complex and emerging study designs in Uganda
BACKGROUND: Over the past two decades, Uganda has experienced a significant increase in clinical research driven by both academia and …
Article scientifique
Ethical considerations for involving adolescents in biomedical HIV prevention research
BACKGROUND: Involvement of adolescent girls in biomedical HIV research is essential to better understand efficacy and safety of new prevention …
Article scientifique
The ethical implications of verbal autopsy: responding to emotional and moral distress
BACKGROUND: Verbal autopsy is a pragmatic approach for generating cause-of-death data in contexts without well-functioning civil registration and vital statistics …
Article scientifique
South African traditional values and beliefs regarding informed consent and limitations of the principle of respect for autonomy in African communities: a cross-cultural qualitative study
BACKGROUND: The Western-European concept of libertarian rights-based autonomy, which advocates respect for individual rights, may conflict with African cultural values …
Article scientifique
Motivation to participate and experiences of the informed consent process for randomized clinical trials in emergency obstetric care in Uganda
BACKGROUND: Informed consent, whose goal is to assure that participants enter research voluntarily after disclosure of potential risks and benefits, …
Article scientifique
A scoping review of considerations and practices for benefit sharing in biobanking
BACKGROUND: Despite the rapid global growth of biobanking over the last few decades, and their potential for the advancement of …
Article scientifique
Gurus and Griots: Revisiting the research informed consent process in rural African contexts
BACKGROUND: Researchers conducting community-based participatory action research (CBPAR) in highly collectivistic and socioeconomically disadvantaged community settings in sub-Saharan Africa are …
Article scientifique
Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa
BACKGROUND: Biobanking provides exciting opportunities for research on stored biospecimens. However, these opportunities to advance medical science are fraught with …
Article scientifique
A scoping review of genetics and genomics research ethics policies and guidelines for Africa
BACKGROUND: Genetics and genomics research (GGR) is increasingly being conducted around the world; yet, researchers and research oversight entities in …