110 publication(s) trouvée(s)
Article scientifique
Ethical challenges of the healthcare transition to adult antiretroviral therapy (ART) clinics for adolescents and young people with HIV in Uganda
BACKGROUND: Whereas many adolescents and young people with HIV require the transfer of care from paediatric/adolescent clinics to adult ART …
Article scientifique
Prioritising ‘already-scarce’ intensive care unit resources in the midst of COVID-19: a call for regional triage committees in South Africa
BACKGROUND: The worsening COVID-19 pandemic in South Africa poses multiple challenges for clinical decision making in the context of already-scarce …
Article scientifique
Enhancing the ethical conduct of a longitudinal cluster-randomized trial of psychosocial stimulation intervention for children with complicated severe acute malnutrition through Rapid Ethical Assessment: a qualitative study
BACKGROUND: Informed consent is a universally accepted precondition for scientific researches involving human participants. However, various factors influence the process …
Article scientifique
Lay persons’ perception of the requirements for research in emergency obstetric and newborn care
BACKGROUND: Factors that could potentially act as facilitators and barriers to successful recruitment strategies in perinatal clinical trials are not …
Article scientifique
Qualitative study of comprehension of heritability in genomics studies among the Yoruba in Nigeria
BACKGROUND: With growth of genomics research in Africa, concern has arisen about comprehension and adequacy of informed consent given the …
Erratum
Correction to: South Africa’s new standard material transfer agreement: proposals for improvement and pointers for implementation
An amendment to this paper has been published and can be accessed via the original article.
Article scientifique
Clinical Ethics Committees in Africa: lost in the shadow of RECs/IRBs?
BACKGROUND: Clinical Ethics Committees (CECs) are well established at healthcare institutions in resource-rich countries. However, there is limited information on …
Article scientifique
Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?
BACKGROUND: A key ethical question in genomics research relates to whether individual genetic research results should be disclosed to research …
Article scientifique
Human genome editing: how to prevent rogue actors
BACKGROUND: Human genome editing technologies offer much potential benefit. However, central to any conversation relating to the application of such …
Article scientifique
Bioethics and the use of social media for medical crowdfunding
BACKGROUND: Social media has globalised compassion enabling requests for donations to spread beyond geographical boundaries. The use of social media …
Article scientifique
A principled ethical approach to intersex paediatric surgeries
BACKGROUND: Surgery for intersex infants should be delayed until individuals are able to decide for themselves, except where it is …
Article scientifique
South Africa’s new standard material transfer agreement: proposals for improvement and pointers for implementation
BACKGROUND: Whenever South African (SA) research institutions share human biological material and associated data for health research or clinical trials …
Article scientifique
Ethical and human rights considerations in public health in low and middle-income countries: an assessment using the case of Uganda’s responses to COVID-19 pandemic
BACKGROUND: In response to COVID-19 pandemic, the Government of Uganda adopted public health measures to contain its spread in the …
Article scientifique
Structural coercion in the context of community engagement in global health research conducted in a low resource setting in Africa
BACKGROUND: While community engagement is increasingly promoted in global health research to improve ethical research practice, it can sometimes coerce …
Article scientifique
Ethical practice in my work: community health workers’ perspectives using photovoice in Wakiso district, Uganda
BACKGROUND: Health service delivery should ensure ethical principles are observed at all levels of healthcare. Working towards this goal requires …
Article scientifique
A qualitative study exploring stakeholder perspectives on the use of biological samples for future unspecified research in Malawi
BACKGROUND: There is growing interest in the collection, storage and reuse of biological samples for future research. Storage and future …
Article scientifique
Egyptians' social acceptance and consenting options for posthumous organ donation; a cross sectional study
BACKGROUND: Organ donation has become one of the most effective ways to save lives and improve the quality of life …
Article scientifique
A qualitative study on aspects of consent for genomic research in communities with low literacy
BACKGROUND: Low literacy of study participants in Sub - Saharan Africa has been associated with poor comprehension during the consenting …
Article scientifique
Impact of legislation and public funding on oncofertility: a survey of Canadian, French and Moroccan pediatric hematologists/oncologists
BACKGROUND: Chemotherapy and/or radiotherapy treatments may cause premature ovarian failure and irreversible loss of fertility. In the context of childhood …
Article scientifique
Perspectives regarding privacy in clinical research among research professionals from the Arab region: an exploratory qualitative study
BACKGROUND: Protecting the privacy of research participants is widely recognized as one of the standard ethical requirements for clinical research. …